HISA QLD: Sharing Health-Y Data: Challenges and Solutions
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HISA QLD: Sharing Health-Y Data: Challenges and Solutions

When: Wednesday 16 March 2016
1.00pm for 1.30pm start, until 5.30pm
Where: Auditorium, Translational Research Institute
37 Kent Street
Woolloongabba, Queensland  4012
Contact: 03 9326 3311

Online registration is closed.
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Sharing health-y data: Challenges and solutions

Health data from human research participants are often not published or shared due to their potentially-sensitive nature. This is changing as funders, publishers and researchers themselves want to share these data to collaborate with others and utilise existing, high-quality health data. With planning and understanding around legal and ethical questions, human data can often be shared safely to great success. Come and discuss how at this Brisbane-based workshop.

This will be of interest to clinicians, nurses, researchers, research support staff, data managers and research ethics committee members who work with human research data.

This event is sponsored by QCIF and TRI and held in conjunction with the Australian National Data Service (ANDS).

Registration Fees
This event is free for HISA members and $25.00 non-members. Please register via the above link to confirm your attendance. Light lunch provided from 1pm.


1.00pm Registration opens and light lunch provided
1.30pm Welcome
Mark Brommeyer Chair, HISA Queensland
1.35pm What are health and sensitive data and why are they trickier to publish and share? 
Sarah Olesen Senior Writer & Data Consultant, Biotext - formerly of ANDS
Kate LeMay ANDS

Checking the ethics and legalities of shared health data

2.05pm Privacy and legal framework: Privacy needs to embrace security, confidentiality, trust and safety, to minimise the risk of harm
Peter Croll Cyber Security and Privacy Consultant, www.PeterCroll.com
2.20pm Update on legislation, ethics and governance for re-use of identifiable health and clinical data in the Qld public health sector
Melissa Hagan Manager, Health and Medical Research, Queensland Health
2.35pm Licensing health and sensitive data
Baden Appleyard Queensland Bar, Advisory Council on the Open Definition
2.50pm Ethical considerations for accessing data for research
Conor Brophy Chairperson, Royal Brisbane and Women's Hospital Human Research Ethics Committee and Chair, Mater Health Services Human Research Ethics and Governance 
3.05pm Table discussions followed by Checking the legalities Panel Q&A
Moderator: Susan Smith, HISA QLD
3.15pm Afternoon tea
Managing health data so it can be shared and published

3.35pm RedCap: Data management tool for capturing and sharing clinical data 
Xin-Yi Chua QFAB Bioinformatics
3.45pm Sharing/accessing data through “My Health Record” 
Larissa Briedis Manager, Policy and Planning, National E-Health Transition Authority (NEHTA)
4.00pm Queensland Department of Health data linkage service
Dr Trisha Johnston Director and Catherine Taylor Principal Data Linkage Officer, Statistical Analysis and Linkage Unit, Statistical Services Branch, Queensland Department of Health
4.15pm Table discussions, followed by Q&A with Managing data panel
Moderator: Hugo Leroux, HISA QLD

Publishing health data

4.35pm The guide to publishing and sharing sensitive data and message from the day
Kate LeMay ANDS
4.55pm Journal policies and repositories for health data
Iain Hrynaszkiewicz Head of Data and HSS Publishing, Open Research at Nature Publishing Group / Palgrave Macmillan **recorded webinar**
Final Q&A
Moderator: Sarah Olesen
5.25pm Thank you and closing remarks
Andrew White ANDS
Dominique Gorse HISA QLD






















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